Today was the first day of real tears.
We talked in great length with our oncologist about the process of things and the roles various people will play in the process as it unfolds. Although much of the process will be determined once the pathology of the biopsy tells us exactly what he has, some anxiety was relieved as we were given some possible scenarios. This helps us understand why we sometimes have to wait and when some of those long waiting periods will occur.
We also got to meet with our pediatric surgeon, Dr. Greenholz. He was great and spent quite a bit of time with us in the hallway discussing what he saw in the CT scan.
What we learned today:
1. Hospital internet is not reliable
2. The tumor is very large (much bigger than a grapefruit)
3. It is metastatic (spreading)
4. It is almost certainly malignant
5. Malignant cells are also in his liver
6. Several blood vessels are running through the middle of the tumor, and the tumor also encases his aorta and renal vessels
7. They cannot try to remove it because of #6
8. It probably originates from his kidney
9. He will very likely lose his left kidney
10. The biopsy surgery will happen Tuesday or Wednesday ( I’d put my $ on Wed.)
11. During surgery they’ll insert a broviac (sp?)—a central line which will have 2 tubes coming out of his chest to administer the chemotherapy and draw blood
12. He’ll probably start chemo on Friday
13. The goal of chemo is to shrink the tumor as much as possible, but at some point he will have a major surgery that will try to remove the remaining tumor. That will be a major bridge to cross when we get there.
14. We'll have a lot more info and certainty once the biopsy pathology comes back (know what kind of tumor specifically, treatment plan, etc)
15. The only thing that may keep William from coming home between now and the biopsy is his high blood pressure
16. William rocks at Battleship and enjoyed his visitors
We are holding up well, trying to remember to eat once in a while and understand that this is just the beginning of a very long road. Words don’t even come close to being able to express our gratitude for the outpouring of prayers and support in our behalf. We can’t respond to all emails, calls, or texts, but we do get them and appreciate the messages. Your overwhelming support makes a big difference.
We feel an amazing sense of peace and comfort from our faith in Jesus Christ. We know that He is watching over William and our family and our needs and capacities are known.