As soon as we arrived, it became obvious that all the boys wanted to do was roll in the snow. (Think stressed out mom who just wants to unpack and get settled, while 5 boys ignore her pleas to stop breaking icicles and stomping through the snow without boots or coats.) On Tuesday we headed to Echo Summit and the boys surprised us by lasting 5 hours in the snow! They were in their element. We paused once to have hot chocolate and snacks and then it was back to the runs.The weather was great. It was a little overcast, but the sun came out in the late afternoon. Even William begged to stay longer. Ryan and I were exhausted due to carrying William up the hill so many times, but it was so worth it!
On Day 2, we offered more low-key options: movie (at the theater!), scenic drive, lunch at a restaurant.... Nope! They all insisted on another day of sledding. Even William had uncharacteristic energy and enthusiasm. The only difference with this day the complete lack of clouds in the sky. It was beautiful and the boys came home sporting sunburned faces--some a little more unfortunate than others, but they had a blast. It was so warm, we were peeling off layers. After 4 hours of sledding, we were trying to keep them awake during the drive home so we could just put them straight to bed.
|We did insist on the scenic drive to Emerald Bay, but all they wanted to do was climb!|
|Our balcony view was fantastic. Hot tubing every night was a welcome treat!|
Thank you to dear friends who helped make this trip possible and our burdens a little lighter. We had a wonderful time!
The next morning William had to be up at 6:30 AM for the first of 12 days of radiation. Lovely. This week he also began his new outpatient chemotherapy regimen: Irinotecan and Velcade. The most brutal part is the schedule: 7 AM radiation appointment at Sutter General in downtown Sacramento and then chemotherapy at Sutter Memorial in midtown. He is receiving radiation to his liver, left inguinal (groin), and entire shin and ankle. He seems to be tolerating it all fairly well with mild, but controlled nausea. However, he has lost most of his appetite. He eats very little during the day, but continues to receive TPN and lipids at night via his broviac. The best part about it is all the reading time. William has finally found a series he LOVES and is finally feeling well enough to read...all the time! He reads during chemo and then comes home and reads for hours on the couch or in his bed (besides the occasional nap). He started the Fablehaven series while we were in Tahoe (1 1/2 weeks ago) and he's already half way through Book 4 of 5 and each book is 300-500 pages long. It makes my heart so happy to see him reading again. That makes things feel normal.