The prognosis of William's disease has never been fantastic and the relapse doesn't make this journey any more fun. But cancer is a fickle thing and children are amazing warriors. We decided to make it more fun. William's list is fairly small. Actually, I think we asked him to list 5 things, so the length of it is our fault. In no particular order, here's the list:
William's Bucket List
Go to Tahoe to go sledding
Go to the beach
Go to San Francisco to have fun (not treatment) i.e. Exploratorium, Academy of Sciences, Alcatraz
With cancer, timing is everything and then some. Seriously, one of these days I would like to just work off my own timetable. Is that too much to ask? Apparently, yes. So many variables make the journey very unpredictable. Luckily, he is tolerating his current chemo regimen well enough that we can at least predict when his good week will be. (He has 1 chemo week, 1 down week, 1 good week, repeat). It's the blood counts and need for transfusions that are not trending as predictable as I'd like. Regardless, we are making the most of the 1 good week and focusing on the bucket list.
Last week, school was out for the entire week. Something to do with furloughs, California budget crisis, our children taking the fall for other's poor decisions... I digress. William spent all day Sunday in the hospital getting blood and platelet transfusions, tanking up for a week of fun. Monday was a holiday. Tuesday the doctor gave a thumbs up on blood counts. Tuesday night we delivered our three youngest to their cousins house and we all spent the night. Wednesday morning Ryan, William, Clark, and I flew to Austin, TX! Sunday we flew back, picked up the boys, and drove home.
Here's a recap of what we did in between. (hint: click on each collage to enlarge)
|We ate A LOT of amazing Texas BBQ at The Salt Lick and Rudy's. How can you not love a BBQ place that is a gas station too?|
|Boating on Lake Austin with the Harwards|
|The Harwards. Judy was with us for William's delivery so she's known him since the moment he was born!|
|Safari Texas Style. The donkeys and ostrich were a little hungry!|
|San Antonio---The Alamo and Riverwalk. Oh, and ice cream--a necessary food group in our family!|
|Zilker Park canoeing and turtle sightings|
|University of Texas at Austin campus---Football and Track stadiums, engineering buildings, The tower, bookstore|
|Hook 'em Horns!|
|Hiking at Mt. Bonnell|
|Our old apartment: 2nd story above William's head. St. David's Hospital where he was born.|
William checked into the hospital on Tuesday for the next round of chemo. He also had a full set of scans: Chest and abdomen CT, liver ultrasound, ankle x-rays. He'll be here until Sunday. Those updates will be in a forthcoming post.
William wants to share how much he loves his dear friend, Claire. "I really miss her. She was fun to talk to. In Primary, she always knew the answers to questions. She always had a good sense of humor and a beautiful singing voice. She was always sweet and nice to everybody. She was a very good friend to me. It was very nice to have a friend who knew what it was like to be in the hospital all the time. I love and miss you, Claire." William has known Claire since they were 1. Claire had a congenital heart defect and passed away last night. Our thoughts and prayers and love are with her family.