Thank you to friends, neighbors, church members who have swooped in to fill in all the neglected cracks at home. You have helped us maintain balance and routine and eased our burdens countless times.
So what has been going on?
After William returned from his Coloma field trip, he had his normal scans (on a Thurs) to check disease progression before starting a new round of chemo. He was physically exhausted, but we suspected this was from 3 fun and full days of hiking and panning for gold.
On Friday afternoon, we left to San Francisco on another Bucket List trip. We went to a Giant's baseball game that night and then spent Saturday exploring the ruins of Sutro Baths (where my great grandfather was baptized over 100 years ago), visiting Chinatown, riding the trolley, walking the wharf, and a trip to Alcatraz for the night tour. William was too tired the whole trip to do much more than enjoy the ride in his wheelchair. He napped often, but said he had fun.
I suspected the need for blood and worried about his increasing labored breathing. After calling the doctor, we made a stop at the hospital on our way home to receive blood and platelet transfusions overnight. His breathing continued to be labored, but the doctors told us it was due to disease progression, but that discussion would happen on Monday. On Monday, at the scheduled clinic visit, we learned that the tumors were spreading and growing. Uncharacteristically, I haven't taken the time yet to dissect the scans, but basically everywhere he had tumors has more tumors and they have grown, new ones are in his abdomen, and most significantly, in and around his lungs. The tumors aren't responding to treatment. We were given our options and it didn't take long to go through them. We have chosen to discontinue chemotherapy.
A chest x-ray showed an alarming amount of fluid in and around his lungs and we were given less than an hour do decide whether to have chest tubes put into the lungs to drain the fluid or not. We went with the chest tubes. Over 2 liters of fluid drained that afternoon and have continued to drain since.
Over the next several days, we received many tender mercies and answered prayers as solutions evolved as to the course of his care. It would take too long to list, but it is very obvious to us that God's hand was directing the course of events. William was able to come home last Thursday with two chest tubes in place and connected to collection bags. A hospital bed is set up in our room and William is on oxygen 24 hrs/day.
William was able to attend William K.'s funeral on Saturday morning as planned. It was a sweet service and William and I watched a video of the two of them in the hospital dancing and throwing paper airplanes down the hallway. It brought back good memories and William said tenderly after watching it, "I will really miss William. I really liked him. He was a good friend." William returned to the hospital on Saturday afternoon and ended up spending the night getting multiple blood transfusions. Thank you to my dad who had his first hospital sleepover with William so Ryan and I could rest.
On Monday, the last of the Bucket List items was crossed off. He went back to San Francisco for more fun! Aerial fun! He flew over Alcatraz, the Golden Gate Bridge, California State Capitol, Raley Field, the Sacramento Temple, and our home! What an awesome gift. Thank you, Zack! You have a gift for touching the lives of children.
|clockwise from top left: Raley Field, State Capitol and Tower Bridge, William's Hospital, Zack and William, our house, Sacramento Temple|