Monday, December 6, 2010

And The Winner Is...

MIBG Therapy: The Saga in the Lead Lined Room.

At 3:40 PM we finally got the definitive call that sends us to San Francisco tomorrow morning to spend a week receiving treatment. The bone marrow biopsy result is still not in print, but the verbal, preliminary report shows improvement (decrease of cancer cells in the bone marrow), but still evidence of disease. We don't know how much, but enough that the doctors at UCSF want to proceed with the MIBG Therapy treatment option.

So the outlook is to receive this treatment, return right before Christmas to receive an infusion of one of his three previously harvested stem cell units to give his bone marrow a boost, and a few weeks after that William will undergo stem cell transplant.

This is a good step. This is progress. We are nervous and anxious, but we trust in our medical villages and in a loving Heavenly Father who hears our petitions.


  1. We continue to pray for William and your family. I hope that the lead lined room will not be too hard on all of you. Do they happen to have a padded room next to that lead room? Hang in there! We love you guys!

  2. Now that you know the course of treatment, you can hopefully emotionally and mentally prepare (as much as that is even possible with a lead-lined room!). Please know that I am sending hugs and postive thoughts to William and you all each and every day.

  3. soren yelled at me today in costco as i said a quick prayer over our pizza (cause he forced me too:) and loudly proclaimed "mom!! you didn't pway fo william!" so i did it over and slower at his request :)
    we love you guys!!!