Thursday, July 29, 2010

Trying to Move Forward

We came home yesterday afternoon! I am exhausted and William is happy to be home. We are still waiting for whatever confusion is happening with the home health nursing to come and teach me how to set up the I.V. nutrition, but at least we don't have to sit in the hospital to wait on them.

We went to the Drive-In movies last night as promised and because we don't know when he may land back in the hospital this week. That's why a post wasn't made last night! William had a great time. I just love those moments when I can hold him and let him be like a normal little boy and forget, if for just a moment, our reality. We did, however, travel with meds and his shot and took care of that right before the movie started.

The bone marrow harvest is still on, but pending his blood counts. We will be back at the hospital Friday, Saturday, and Sunday to have blood drawn, etc. We should know by Sat. afternoon if the harvest is a go or not. We hope and pray that it happens and we can keep moving forward.


  1. Thank heavens for those normal moments -- they help keep sanity at least somewhat intact! We love you and look forward to seeing your whole family back together soon. We're still praying for all of you. xoxo

  2. you're amazing julie. keep up the great work and the fight. love you all!!

  3. We're thinking of you and praying that everything will look good for the harvest. Keep walking, keep going, don't give up......
    amy p bingham