BMT Admission

William was admitted at UCSF today to begin the Bone Marrow Transplant (BMT) process. We are beginning a whole new lifestyle for the next month and in many ways, for the next six months.

I'll start with the best news of the day.

MIBG SCAN results: clear! No uptake in the liver, pelvic bone, or resection site (tumor site). This means there are no active neuroblastoma cells in his body other than the small amount of stubborn cells in his left leg.

We are thrilled with this news as it means the MIGB therapy, the lead-lined room, isolation, and temporary cramped lifestyle were all worth it. He is one of the 1/3 that benefit from that treatment! Finally, one of the odds that went in our favor! (Deep sigh of relief)

Today was filled with instructions on how to sterilize and sanitize everything that comes into the room and how we live our lives in an environment like this. It's a mental overload right now because today has been full of bundles of new information. But it's all good and we're already settling into a routine.

William is in good spirits and describes today as "Easy. I just stood there and got bathed and then just played my DS while people did stuff." Okay. Tomorrow may be a different story when chemo starts and he may not be feeling too good. We'll see.

I'm off to bed because I'm tired and because I actually have a real bed with a mattress and it doesn't fold up or out. Ahhhhhh. The simple pleasures. More tomorrow on our lifestyle. I promise.