Friday, January 14, 2011

Two Hospitals in One Day

Two appointments (sort of), two different hospitals, all today, and not exactly planned that way, of course! The whirlwind of tests and scans to prepare for transplant has begun.

This morning we left the house quite early to head to San Francisco for a blood draw for labs that are needed in preparation for transplant. It was a long drive for such a quick thing, but it had to be done in the SF lab. Luckily, I was able to talk with one of the transplant doctors for a while to answer more questions. The doctor examined William and noticed his heart beating a little fast and that he looked a bit pale (I think William is always a bit pale), so our plans changed a bit. We were planning on a Tuesday blood transfusion, but since the weekend was long, his blood levels were already borderline, and he had a lot of blood drawn today for labs, the doctor wanted a transfusion today. So I called our hospital in Sacramento and arranged to come in straight from San Francisco for blood. Oh, the life. But at least on Tuesday we will have one less thing to do at the hospital. And hopefully we can make it home within 13 hours from when we left home this morning.

Yesterday was the kickoff to our week or so of transplant prep actvities. For starters, William had another bone marrow biopsy and aspirate to test for any remaining cancer cells in the bone marrow. We anxiously await the results on Tuesday. (Darn 3 day weekend). It went smoothly and William was thrilled with Child Life's new acquisition: an Ipad! And they even loaded Angry Birds in HD just for him! We make each biopsy "fun" by video taping how long it takes the Propofol to kick in. William plays Angry Birds and tries to see how many birds can be launched from the time the injection begins until he's out. It's usually 1-2 birds.

Here's the rundown of the remaining fun activities: PFT (pulmonary function test), MIGB injection, audiogram, EKG, ECHO, MIBG scan, CT scan, 2 clinic visits, and as afternoon trip to SF for me and Ryan for the consent conference where we hear all the risks in detail and sign all the papers for transplant. Then we have the weekend at home, (exhale), before heading back to SF on Monday the 24th to begin our month long (hopefully not longer) hospital party, (inhale and hold it).


  1. Julie, you are remarkable. We have been following your blog since we found out about it in June, and you, William, and the rest of the family are in our thoughts and prayers. Keep up the inspiring work, endurance, and attitude! You are amazing!!!
    Julie Young

  2. This comment has been removed by the author.

  3. Randu said...
    You're back in the swing of it! I bet your break wasn't quite long enough. :) We would love to have the boys come play during your busy week of tests next week. Let me know? As always, we're praying for, and pulling for, William and all of you.

  4. Sorry--login problems around here. That was me (Erin) both times. Who is that strange Randu guy and why has he been logging in on my computer? ;)

  5. julie i love you, ryan and all of you. we are praying for william in every prayer. and you and ryan too. you are such a champ and such an inspiration to me. thank you for your brave and corageous example. love you tons.

  6. We love to see Will and Jen- familiar faces for Will and Angry Brids-no wonder he did so well. We are counting the days until we come. And wnat you to know that we are always thinking about all of you, and pray for your good days. Loves--