Preparing to come to the hospital:
- wash all clothes
- seal all items in plastic bags (Ziploc), i.e. clothes, pillows, stuffed animals in
- no toothbrush or opened toiletries
- scrub for 2 minutes up to our elbows in the ante room (enclosed entryway with a sink and storage cupboards)
- William given a sterile bath. Think sponge bath, but with heated, sterilized, bottled water and special antiseptic soap.
- Put on clean, sanitized clothing from home.
- Everything we brought had to be wiped down with sanitizing wipes before entering the room. The wipes are so powerful that rubber gloves must be donned.
- William may not leave the room.
- Hands must be washed every time upon entering the room.
- 2 minute scrub to elbows only if you go outside the hospital.
- Only William can eat and drink in the room. I have to stand in the ante room to eat or drink. This puts a cramp in any snacking urges. And the outside door is a glass door that looks right at the nurses station.
- No outside food permitted in the room, i.e. restaurant, homemade.
- Any food not prepared in the hospital must be individually wrapped and sealed.
- Once the seal is broken, it must be consumed in 2 hours or thrown away.
- William's food is prepared in a special neutropenic kitchen.
- William is given a sterile bath each day.
- He he must swish three times back to back, 4 times a day with a special solution to clean his mouth.
- Brush his teeth daily with the disposable sponge on a stick toothbrushes.
- Bed linens are changed daily. The linens for the BMT kids are washed and stored differently to make sure they are very, very clean.
- No toilet paper is used. Sterile gauze pads may be dipped in sterile water and/or sterile soap solution if needed.
- Only William may use his bathroom.
- The shower may not be turned on since the pipes in the hospital are old.
- Only bottled water is consumed.
William is on day 2 of chemo. He is receiving Busulfan for 5 days and then Melphalan for 1 day. Then 24 hours after that . . . Transplant (Monday). So far he is tolerating it quite well and continues to eat. The doctors told me this morning that side effects can be slightly delayed, but it's a good sign he's still eating. We are told the Melphalan won't be so pleasant. William is pre-medicated before the Busulfan with Ativan for nausea and possible seizures. It makes him a bit loopy and dizzy, but in an entertaining way. Yesterday he asked why I had two heads. He laughed. That's good.
Soon to come: pictures and perhaps a video tour.