Bone Marrow Biopsy and Aspirate
- Right leg continues to be clear of any disease.
- Left leg still has measurable disease at <3%. This is an improvement from the <5% before the MIBG therapy in December. Of course, we are saddened by this result as we had hoped for remission before proceeding to transplant. This result means there is a slightly higher chance his cancer could return or not be cured at all. But looking at the bigger picture, his bone marrow was 95% infected at diagnosis. He's made lots of progress! William has undergone the most aggressive forms of treatment available for neuroblastoma. We have no regrets as to the course of his treatment. This is just the way his body and the cancer have responded.
- Continues to have increased mild hearing loss in the high pitch range.
- He is still within the range of normal speech development. Thankfully, the new chemo regimen he will undergo before transplant does not have the toxicity to hearing that the former regimen has.
- This will keep him out of military service!
- Some parts were normal. Others were not.
- Some of his flows were measured at 50%. This is not too concerning given his age, what chemo he has tolerated, how he may have felt that day, inexperience with the test, but it is acceptable to proceed with transplant and will be monitored long term.
- Decreased number and size of the previously noted lesions in the liver.
- The largest has decreased in size from 1.4 cm to 1 cm.
- results still pending.
Ryan and I met with one of the transplant doctors to discuss at length the transplant process and the risks involved. It went well and we feel at peace, but it's very sobering when you must participate in a discussion about the realities of your child's health. There are risks and although many things are rare, they still happen at frequencies we wish didn't exist.
We've got a busy weekend getting everything prepared and spending some quality time with the boys. I'll post more details later of all the precautions and restrictions that go along with t he transplant.